We are proud to be learning from community voices

Grateful to those sharing their unique stories with us

young child living with achondroplasia with his parents

Miguel

A young child living with achondroplasia who overcame a serious medical complication

At 9 months of age, Miguel experienced a serious complication that put him at risk of becoming paraplegic or dying. With surgery and the support of healthcare professionals and family, Miguel was able to enjoy a successful transition to toddlerhood.

teenager living well with achondroplasia

Anais

A teenager living well with achondroplasia

Anais was diagnosed with achondroplasia in utero. With the support of her parents and other families with achondroplasia, she enjoys an active life and sees a bright future ahead.

Have a story to share?

We are committed to supporting people with achondroplasia and their families

There are many advocacy groups that foster connections in the achondroplasia community and provide resources and support

Some advocacy organizations include:

This is not a full list

Looking for more information or advocacy resources?

Learn more about the science of achondroplasia