Your Voice,
Our Commitment

We are proud to learn from the community’s voices and are committed to supporting people living with skeletal dysplasias and their families.

a smiling young girl from the achondroplasia community, standing outdoors, embodying confidence and joy

Personal Stories

Hear the inspiring journeys of those living with skeletal dysplasias.

Share Your Story

Share your skeletal dysplasia journey to inspire and encourage others.

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On Rare Podcasts

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Find Connection and Support

There are many advocacy organizations and hypochondroplasia and achondroplasia support groups that offer vital connections, resources, and a sense of community for those living with skeletal dysplasia. Some of these groups are listed below.

Looking for more information or resources?

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MyAchonJourney logo

MyAchonJourney is an online resource that provides education for individuals and families seeking achondroplasia support and reliable information.

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